UNOS

United Network
for Organ Sharing

OPTN

Organ Procurement and
Transplantation Network

TRANSPLANT LIVING

Information and Resources
for Transplant Patients

LIFECENTER NW

Living Donor Registry

 

LINKS TO LUNG DISORDERS

The following links are to websites that may be of particular interest to members of our group. There are hundred's of websites out there with a wealth of information, but it takes a lot of time to go through them to find the best. If you know of a site that you find particularly helpful and you think may be of help to others, please let us know about it. Some people may have found sites concerned with a particular lung disease that others may have not found, a link to that website might be very useful to others with that problem.

A patient recently submitted that Yahoo Groups has several groups relating to lung diseases/disorders and transplants. If you are interested in finding a group, you can go to www.yahoogroups.com and search for something of interest to you.

LUNG DISORDERS/DISEASES

Alpha 1

  • Alpha-1 Association  A compehensive site covering the Alpha-1 Association, AlphaNet, and Alpha-1 foundation.
  • Alpha2Alpha   Peer-to-peer support and information for people having emphysema and other health disorders related to Alpha-1 Antitrypsin Deficiency.
Bronchiectasis COPD/Emphysema
  • Efforts   If you are looking for more information or support about Emphysema or other Chronic Obstructive Pulmonary Disease (COPD), you have found the most energetic and comprehensive organization on the web (their words, but this is a very popular site).
Cystic Fibrosis Lymphangioleiomatosis
  • The LAM Foundation The LAM Foundation provides support, education, and hope to women with Lymphangioleiomyomatosis (LAM), a progressive, debilitating lung disease.
Pulmonary Fibrosis
  • Coalition for Pulmonary Fibrosis  The Coalition for Pulmonary Fibrosis (CPF) is a national nonpartisan organization led by physicians, medical research professionals, patient advocates, and organizations impacted by pulmonary fibrosis.
Pulmonary Hypertension
  • Pulmonary Hypertension Association Pulmonary hypertension is a rare blood vessel disorder of the lung in which the pressure in the pulmonary artery (the blood vessel that leads from the heart to the lungs) rises above normal levels and may become life threatening......