United Network
for Organ Sharing


Organ Procurement and
Transplantation Network


Information and Resources
for Transplant Patients


Living Donor Registry


Upcoming speakers:



From Betsy Nelson

Promoting Organ Donation via Donate Life Northwest

Betsy's Story

Support Groups

One of our long-time members has forwarded some information on support groups many of you may be interested in, especially those who may not be able to attend our monthly group, or feel they are in need of more or a different type of support. Check it out here. This website may provide much more informaiton for those dealing with PF.

These links have also been added to our LINKS page.


Looking for updates on transplant recipients? If they have sent us new information you'll find it on our Family Updates Page.


A big thank you to Mike Henderson for providing us with information on some of Portland's lung-related support groups. Check it out here or on our Calendars page.


To everyone who has noticed the lack of attention to our website: I am very sorry I have neglected this as much as I have. It has been amazing to me how much more I have to do since I am home and able! Also, how much more I WANT to do!!! I promise to try to do better in the coming year. Hope you all had a great holiday season.

Please be sure to refresh the page as updates often won't show without refreshing your cache.


In a support group, members usually provide each other with various types of help for some kind of “shared” problem. This help often may take the form of personal experiences, sympathetic understanding, providing relevant information and establishing social networks. Many believe this is a crucial factor in coping with what may be life-altering circumstances.

The members of the UW Lung Transplant Support Group strive to be an important part of the lives of those awaiting transplant, those who have been transplanted and their families, friends and caregivers.


The Lung Transplant support group consists of an informal monthly meeting of people who have undergone lung transplantation or are being considered for transplantation, their caregivers and family members. Meetings are held on the SECOND TUESDAY of each month from 12:30 PM to 2:00 PM in the Plaza Cafe Conference Rooms (first floor through the cafeteria area) at the University of Washington Medical Center. The discussions provide a good opportunity for people who are contemplating lung transplantation to ask questions of those who have gone through it and a good opportunity for the old-timers to tell their war stories. Primarily this is a social event and a chance to exchange information.

For more information regarding the UW Support Groups, please contact Angela Wagner, Lung Transplant Social Worker, at 206-598-2676.

Apr. 8, 2014

Click here to view the full 2014 meeting calendar

The Transplant Caregiver support group

has been cancelled for the remainder of 2013.

Please come back in 2014 for updates


The Lung Transplant support group roster is updated and maintained by Jan Landis. Copies of the list are available at monthly meetings and a form will be circulated for additions and changes.

If you would like a copy emailed to you, please contact Jan. If you are unable to view MS Word documents be sure to note in the email that you would like a PDF version. If you do not have email access, contact Jan at 425-486-5417 for instructions to recieve a roster via the postal service (please leave name and contact number).

Any changes to the list can be sent to Jan by either email or phone. If you know that a name on the list should be removed, or if you want your info removed or changed, please notify Jan.